Cystagon
Generic name:cysteamine [ sis-TEE-a-meen ]
Brand names: Cystagon, Procysbi
Drug class:Miscellaneous uncategorized agents
What is Cystagon?
Cystagon works by reducing the amount of cystine (an amino acid) in the body.
Cystagon is used to treat nephropathic cystinosis (NEF-roe-PATH-ik SIS-tin-OH-sis), a rare genetic condition that causes a build-up of cystine in the kidneys and other organs. Too much cystine can cause kidney failure or other medical problems.
Cystagon is for use in adults and children, but Procysbi should not be given to a child younger than 1 year old.
Cystagon may also be used for purposes not listed in this medication guide.
Warnings
Follow all directions on your medicine label and package. Tell each of your healthcare providers about all your medical conditions, allergies, and all medicines you use.
Before taking this medicine
You should not use Cystagon if you are allergic to Cystagon or penicillamine.
Tell your doctor if you have ever had:
any type of skin rash;
bone problems (including fractures);
epilepsy or other seizure disorder;
low white blood cell (WBC) counts;
depression, drowsiness, or nervous system disorder; or
stomach ulcer, or bleeding in your stomach or intestines.
It is not known whether this medicine will harm an unborn baby. Tell your doctor if you are pregnant or plan to become pregnant.
You should not breastfeed while using this medicine.
How should I use Cystagon?
Follow all directions on your prescription label and read all medication guides or instruction sheets. Your doctor may occasionally change your dose. Use the medicine exactly as directed.
Swallow the capsule whole and do not crush or chew it.
If you cannot swallow a capsule whole, carefully follow the patient instructions for opening the capsule and mixing the medicine with certain foods. Your doctor may recommend that you use Cystagon oral granules.
Do not crush or chew oral granules.
Procysbi works best if you take it without food, at least 30 minutes before or 2 hours after a meal. If you cannot take the medicine without eating, eat only a small amount (1/2 cup) of food within 1 hour before or 1 hour after you take the medicine.
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